Sounds Familiar?

You’ve been told to include patients and the public in your research. So you add someone to an advisory group or send out a survey. You know it could be better, but no one’s shown you what meaningful PPIE actually looks like in practice.

That’s how tokenism happens, not through bad intentions, but lack of practical guidance.

This guide helps you move beyond tick-box involvement and build research with people, not just around them.

Inside you’ll find:

• Lived experience as expertise.
• Clear, accessible communication.
• Real partnership and co-creation.

Plus practical tools you can use straight away:

• Self-assessment tool.
• Templates.
• Quick guide.
• 6 worksheets covering inclusion, communication, wellbeing, recognition, and impact.

Built for researchers who want PPIE to be more meaningful, inclusive, and effective.