Sounds Familiar?

You’re recruiting for a rare disease study. Everything looks fine on paper, but something doesn’t sit right. Stories feel rehearsed, details don’t fully add up, or you’re unsure how to ask for verification without losing trust.

You don’t want to get it wrong, but you also can’t ignore the risk.

This toolkit is the structure you wish you had.

Inside you’ll find a practical 6-part system covering ethical verification principles, a step-by-step workflow with templates, guidance on transparent communication and interviews, key red flags, simple risk scoring for decision-making, and ready-to-use email templates for every stage of recruitment.

Built for research teams who need a consistent, ethical way to protect data quality in rare disease studies without losing trust with participants.